Everly is the happiest little girl there ever was! She loves tasty food and drinks, her family and friends, her toys and playing, and so much more! One other thing Everly loves is experiencing new things. She loves to travel and try new fun activities. We are so excited for Everly to go to camp CCK with TSE because she gets to experience so many of her favorite things!!!

Everly is the happiest little girl there ever was! She loves tasty food and drinks, her family and friends, her toys and playing, and so much more! One other thing Everly loves is experiencing new things. She loves to travel and try new fun activities. We are so excited for Everly to go to camp CCK with TSE because she gets to experience so many of her favorite things!!!

Everly is the happiest little girl there ever was! She loves tasty food and drinks, her family and friends, her toys and playing, and so much more! One other thing Everly loves is experiencing new things. She loves to travel and try new fun activities. We are so excited for Everly to go to camp CCK with TSE because she gets to experience so many of her favorite things!!!

Wylie is a six-year sweetie with full trisomy-18. She is the youngest of the Duerson family with five siblings earthside. She loves conversations and music. She is learning to stand, walk, take tastes of food, and to communicate with her Tobii device. She is fulfilling God’s great purposes for her life by changing the lives of the people who get to know her love, strength, trust, and resilience.

I remember being told that my sweet little baby would not make it long in this world. I was told that children with Trisomy 13 would likely not live to be even a year old. But what I was not told is the amazing, joyful, resilient and vivacious little girl I would have the privilege to parent. I had no idea how much Pevie would love to put her toes in the sand and feel the waves roll over her feet. I couldn’t imagine the hysterical fits of laughter we would all have together as a result of her contagious laughter. Pevie isn’t typical but she’s downright amazing. She loves fiercely. Enjoys the simplicity of her toys and her home. Is always game for adventure and travel. Relishes everything to do with swimming and water. Adores her siblings more than anything. Gives kisses and hugs generously. Never judges. Always perseveres. Our curly haired, sweet girl is fearfully and wonderfully made.

She is the happiest girl who loves to smile and giggle. She loves her family, her nurse, Bluey, and Gracie’s Corner. She can’t wait to come back to camp this year and see her friends!

Jeremiah Heller was born Nov 23rd 2022 at Vanderbilt in Nashville, TN with mosaic Trisomy 18. He has been a fighter since day one when we came home on Hospice because we were told that he had biliary atresia. However, it ended up that he was misdiagnosed, he just had slow bowels and he kept fighting every obstacle including colds, UTI’s, and blood infections... By the grace of God, our cardiologist fast tracked him to a heart surgery to close a large VSD that changed his story from one of fighting to thriving! It was a hard first year but he has shown everyone how strong he is and has helped to change the narrative for Trisomy 18 at Vanderbilt. We are so excited to attend camp this year and his brother’s can’t wait to do lots of fun stuff with him and all our other friends who have become like family to us!

Julia Choe was diagnosed with Trisomy 18, or Edwards Syndrome, during her mother’s first trimester of pregnancy. Surviving birth, Julia began to show the world she is compatible with life each day after, which has now turned into years of strength and perseverance. At seven years old, Julia continues her mission to thrive after undergoing numerous hospital visits, surgeries, doctor visits, and therapies. Living in Austin with her family, Julia attends public elementary school where the students and faculty embrace her differences, and provide inclusive opportunities for her. While not attending doctor appointments and therapy sessions, Julia enjoys swimming with her brother and sister, listening to music, watching movies and reading books.

Hope is 2.5 years old with full Trisomy 18. She brings so much joy into our lives. We never could have imagined a life with a child with complexities, and now we couldn’t imagine one without! Hope brings light and warmth everywhere she goes, she has brought insurmountable amounts of laughter and love into our home. We have been so thankful to enjoy her beautiful life everyday.

The incredible Harper Head, is a 4-year-old hepatoblastoma survivor and heart warrior who defies limitations with her unwavering spirit! Despite having Full Trisomy 18, this courageous girl diligently works to achieve and learn things that others may take for granted, inspiring everyone around her with her contagious smile and joyful energy. Swinging, throwing, and kicking her ball, and playing with daddy are among her favorite things to do, spreading joy wherever she goes!

Charlotte is a sassy 6 year old who was born with Trisomy 18. She began her life on comfort care/hospice but proved to everyone that she was going to determine her own journey and live her life on her own terms. She graduated hospice at a month old with the addition of many tools, therapies, and specialists. Charlotte loves Bluey, being outside with the wind in her face, and her grandpa the most. Oh, and she just graduated Kindergarten this May! Her smile is infectious and she brings so much love and joy to all she meets.

Miley was placed with us, voluntarily, by her birth mother for adoption in April 2022 due to a lack of resources in their rural town and the stress of raising a complex child as a single mother with 3 other children. She was on hospice at the time and we were given a very poor prognosis of her living much longer. In fact…

Hi! I'm Cora! I'm five years old and some of my favorite things to do are snuggle with my four older siblings, have quiet time with my dad each morning, go for walks with my mom and listen to Lauren Daigle songs!

Esther is a little warrior that loves adventures. She is so incredibly sweet and loving. She is happiest when outside playing with her family or exploring new places. She loves to travel and play wild and crazy with her siblings.

Everly is the happiest little girl there ever was! She loves tasty food and drinks, her family and friends, her toys and playing, and so much more! One other thing Everly loves is experiencing new things. She loves to travel and try new fun activities. We are so excited for Everly to go to camp CCK with TSE because she gets to experience so many of her favorite things!!!

Everlee is the youngest of 11 and everyone’s favorite person! She loves music, laughter, swinging, and dancing. Her favorite activities include being tossed in the air for that feeling of flying, dancing while daddy plays the guitar, and making noises with toys in her hands. She loves watching Cocomelon and spending time with family! She brings a smile to everyone who encounters her! She’s the happiest girl around!

Emilia has full trisomy 18. She’s turning 5 on November 12, her heart was repaired at 18 months. She’s had Gtube, VNS and heart repair surgeries.

Evalyn is the tiniest and sassiest two year old I know! She is everything sugar and spice and opinion! There isn’t a day that goes by that her smile and joy doesn’t shine brighter than the sun! She LOVES all things lights and she enjoys being on her vibrating plate! Her Daddy is her favorite person followed by her two sisters! She has blessed our family tremendously by existing and we are so thankful to have her in our family!

Arrow is a happy and silly 2 year old who loves the noise and activity that his 4 siblings and dog provide. He loves summertime best because his favorite place is the beach or in the pool, but he also just loves to be outside. He enjoys long hikes in the woods, long walks in his stroller, and going to his therapy center. He spends his days playing hard, napping hard, giggling and snuggling. He’s the apple of his family’s eye.